Health Update

I absolutely love my new PCP and neurologist!

My PCP is retired Navy and actually listens. Doc is slowly trying to undo something’s and investigate others. He really understands the pain I’m in and is trying to get it manageable.

My neurologist is great, I meet him today. He increased my Keppra and changed my migraine medication. He believes I’m having seizures because I’m actually having mini strokes. I have an EEG on Friday.

Please Excuse My Absence

I’m sorry I’ve been gone so long. I’ve been dealing with fibro flares and general ill-health of late. I’ve neglected this blog as well as my other hobby (amateur radio).  At the first of the year, I switch health care insurance and now I have a new primary care physician, my first appointment with him this Wednesday (the 12th), he is a D.O. (Doctors of Osteopathic Medicine, or DOs, are fully licensed physicians who practice in all areas of medicine. Emphasizing a whole-person approach to treatment and care, DOs are trained to listen and partner with their patients to help them get healthy and stay well.)  and not an M.D.; I feel I have better luck seeing DOs.  I have a whole list of things to address with him: my pain levels, not sleeping, more migraines than usual and anxiety et all.

I’m hoping to have things on the mend by the start of Lent so I can write our daily Lenten Devotions that so many of you enjoy, just a reminder that Lent begins February 26th.

Second Visit

I had my second visit with Dr. V on Wednesday. She went over my blood work and it was all good. The lab did rule out Lupus so that is one less diagnosis on my chart! But we traded it for another that goes hand-in-hand with fibromyalgia, Allodynia (pain from touch).

We went over my medication and she increased the gabapentin to 1600mg a day. She also added something for breakthrough pain, Soma. I’ve had a few doses now and I can say it takes the big edge off the pain but if I take it I’m not going anywhere that’s for sure!

I see her again in January!

The Rheumatologist

So I met the rheumatologist today.  She is definitely a good doctor on first impressions, she’s Latina, from Puerto Rico; and is pure spitfire!  I’m going for a round of X-Rays, Lab Work, and I need to have a Sleep Study done.  She agrees 100% that I do indeed have Fibro, though Dr. V. is not fully convinced that I do indeed have Lupus; but she is going to investigate that with some of the lab work.
Continue reading “The Rheumatologist”

The Wait is Nearly Over!

Well, my dear readers I have some encouraging news.  After living in Florida for three years, I finally found a rheumatologist who takes my insurance and is taking new patients!  You’d be surprised how many doctors here are not taking new patients!

Monday morning at 9:30 I will be seeing Dr. Magaly Villafradez-Diaz, M.D., in the Rheumatology department at Omni Health Care. Now prayerfully and hopefully my Lupus, Fibro, and psoriatic arthritis will be properly treated; and maybe just maybe my daily pain can be knocked down a few notches!

Calling All Prayer Warriors

Snowie’s Aunt Judy, a wonderful woman.  Is battling both Leukemia and Fibromyalgia.   We got a report today that Aunt Judy’s white count is dangerously low.  I’m calling on all my readers and subscribers to pause for a moment to pray for Mrs. Judy Dobbins.  It would mean the world to Snowie, myself and the Dobbins family if the power of prayer would do its thing!  Cancer is no joke and having fibro on top of it is just one big battle.  Let us be in one accord that Aunt Judy will be healed!

It’s all in your head.

https://www.nbcnews.com/storyline/americas-heroin-epidemic/americans-are-abusing-over-counter-drugs-well-opioids-study-shows-n846401

This is my reaction to the above article.

The problem is people with chronic pain such fibromyalgia (which I happen to have) are told the pain is all in our heads. A good many of doctors refuse to treat the pain and label us as drug seekers.

Doctors have to listen more to their patients. I’m in pain 24/7 and all I have to rely on is Motrin and Aleeve, as well as BioFreeze and IcyHot (all which barely touch the surface of the pain). While I understand the addiction epidemic there is also a pandemic of pain and physicians are not treating people with pain disorders correctly. It’s time that doctors got a little more education in the sufferings of their patients. End the stigma. We are not drug seekers! We are pain warriors who just want a little relief from pain to live and function like the average person does!

Men with Fibromyalgia

I’ve carried this cross of pain for nearly a decade and some days have been easier to get through than others, especially with no real pain control. Yes we men do make up a good number of people with chronic pain.

I moved to Florida one year and three months ago and since that time I have yet to find a doctor that believe in Fibromyalgia or that men get this disease as well as women.

Just like I haven’t found a physician here that believe that men get migraines, I was told that is purely a women’s disease. I call bullshit on the medical community here in Brevard County Florida. I think all of you doctors need to go back to medical school. Also those of you doctors that are not from the United States and whose native tongue is not English, please try learning the language here a little better you are very difficult to understand.

I’ve been asked a few times why I don’t try natural route ie medical marijuana, even if I wanted to I cannot. The drug is still a Class I Narcotic according to the federal government and as I have a mental health license I have zero tolerance clause. Until such time that the federal government and my secular employer allow such a treatment I can’t even think to get it.

What’s the point of this post…it’s more of a venting rambling while I’m sitting here at work.

Pain and Intimacy

This comes from older blog.

Chronic Pain & Intimacy

Today’s topic is one that is on the taboo side and not talked about that often even with people that do not have Chronic Pain.  So put the kids to bed and get a pencil for some notes!

Continue reading “Pain and Intimacy”