I had my second visit with Dr. V on Wednesday. She went over my blood work and it was all good. The lab did rule out Lupus so that is one less diagnosis on my chart! But we traded it for another that goes hand-in-hand with fibromyalgia, Allodynia (pain from touch).
We went over my medication and she increased the gabapentin to 1600mg a day. She also added something for breakthrough pain, Soma. I’ve had a few doses now and I can say it takes the big edge off the pain but if I take it I’m not going anywhere that’s for sure!
So I met the rheumatologist today. She is definitely a good doctor on first impressions, she’s Latina, from Puerto Rico; and is pure spitfire! I’m going for a round of X-Rays, Lab Work, and I need to have a Sleep Study done. She agrees 100% that I do indeed have Fibro, though Dr. V. is not fully convinced that I do indeed have Lupus; but she is going to investigate that with some of the lab work. Continue reading “The Rheumatologist”→
Well, my dear readers I have some encouraging news. After living in Florida for three years, I finally found a rheumatologist who takes my insurance and is taking new patients! You’d be surprised how many doctors here are not taking new patients!
Monday morning at 9:30 I will be seeing Dr. Magaly Villafradez-Diaz, M.D., in the Rheumatology department at Omni Health Care. Now prayerfully and hopefully my Lupus, Fibro, and psoriatic arthritis will be properly treated; and maybe just maybe my daily pain can be knocked down a few notches!
The problem is people with chronic pain such fibromyalgia (which I happen to have) are told the pain is all in our heads. A good many of doctors refuse to treat the pain and label us as drug seekers.
Doctors have to listen more to their patients. I’m in pain 24/7 and all I have to rely on is Motrin and Aleeve, as well as BioFreeze and IcyHot (all which barely touch the surface of the pain). While I understand the addiction epidemic there is also a pandemic of pain and physicians are not treating people with pain disorders correctly. It’s time that doctors got a little more education in the sufferings of their patients. End the stigma. We are not drug seekers! We are pain warriors who just want a little relief from pain to live and function like the average person does!
I’ve carried this cross of pain for nearly a decade and some days have been easier to get through than others, especially with no real pain control. Yes we men do make up a good number of people with chronic pain.
I moved to Florida one year and three months ago and since that time I have yet to find a doctor that believe in Fibromyalgia or that men get this disease as well as women.
Just like I haven’t found a physician here that believe that men get migraines, I was told that is purely a women’s disease. I call bullshit on the medical community here in Brevard County Florida. I think all of you doctors need to go back to medical school. Also those of you doctors that are not from the United States and whose native tongue is not English, please try learning the language here a little better you are very difficult to understand.
I’ve been asked a few times why I don’t try natural route ie medical marijuana, even if I wanted to I cannot. The drug is still a Class I Narcotic according to the federal government and as I have a mental health license I have zero tolerance clause. Until such time that the federal government and my secular employer allow such a treatment I can’t even think to get it.
What’s the point of this post…it’s more of a venting rambling while I’m sitting here at work.
We spent four days in the shelter, where I was the amateur radio operator; relaying information to/from EOC to the shelter manager. This was the first year that the American Red Cross was no longer in charge of the shelters and with the county in charge.
Everyone feels pain on some level, whether it be emotional or physical, however those that are “normal” the pain passes. Those of us who live with Chronic Pain Syndrome and/or Fibromyalgia deal with it at very high levels and on a daily basis. Pain does change a person, and today my dear Readers I’m going to tell you how it has changed me.
First the back story on how I came to have chronic pain/fibromyalgia. It was late 2010 or early 2011, I was in for a heart procedure at what was supposed to be a world class hospital. Well instead of checking if I had any type of blood clot prior to surgery they went ahead and did the procedure and I stroked out on the table due to a small blood clot. It was a very minor stroke (a TA) but a stroke none the less.