A Letter for All Fibro

*From the Archives of Just Us Owls* From Sue a letter written for all of us Fibro-Warriors! Fibromyalgia? Because you asked... Dear Concerned, You’ve recently asked me about fibromyalgia and I’m sure you’re wondering what all the hype is about. While most people have heard of it by now, that doesn’t mean they know what it [...]

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Happy New Year 2019

Our second podcast is available now Sacrificial Love. If you missed our first you can find it here.

H(Cr)appy holidays

Please stop by and visit my dear brother Martin’s 2018 year post.

Mavadelo's mindscape

Hello my friends and followers

Here I am after a long time, wanting to give you all an update on my life.

as you know my wife is disabled, This started about 15 years ago and until about a year ago this was a stable situation. Although things didn’t improve, they didn’t go worse either. Well… that changed dramatically. Last winter and spring Lijda got more pain in places she never had them. Her joints mostly but also stomach and headaches. We kind of brushed it of as a flu type of thing and carried on as always. Then suddenly around June Lijda woke up one morning asking if I could help her to the toilet. I was unable, there was not a single muscle working in her body and most worrying of all, she was bloody hot and I am not talking looks.

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So I called an ambulance. When…

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An Interesting Ride

On Sunday 16 December 2018 I was rushed to hospital and have been admitted to Palm Bay Community Hospital. I collapsed and had three grandmas seizures and three small after shocks and my floor nurse thinks I may have had a small stroke, Snowie thinks that too. I was given morphine, oxygen and IV Keppra. [...]

Fair Winds and Following Seas to 41

President George Herbert Walker Bush 12 June 1924 - 30 November 2018 https://youtu.be/9AIAKVst7jw Late last night we lost a quiet, humble and courageous leader. George H. W. Bush the Forty-First President of the United States of America, he was 94 years old; and he now joins his beloved Barbra. President Bush and Barbra were married [...]

Second Visit

I had my second visit with Dr. V on Wednesday. She went over my blood work and it was all good. The lab did rule out Lupus so that is one less diagnosis on my chart! But we traded it for another that goes hand-in-hand with fibromyalgia, Allodynia (pain from touch). We went over my [...]

The Rheumatologist

So I met the rheumatologist today.  She is definitely a good doctor on first impressions, she's Latina, from Puerto Rico; and is pure spitfire!  I'm going for a round of X-Rays, Lab Work, and I need to have a Sleep Study done.  She agrees 100% that I do indeed have Fibro, though Dr. V. is not [...]

To Prayer! To Prayer! To Prayer!

Calling All Prayer Warriors! A childhood friend of Snowie's is in great need of prayer.  Thad has stage 4 stage 4 metastatic squamous cell carcinoma of the tongue that has already metastasized to the right and left lymph nodes.  Please take a few minutes and read about him and his struggle; his friends have set [...]

The Wait is Nearly Over!

Well, my dear readers I have some encouraging news.  After living in Florida for three years, I finally found a rheumatologist who takes my insurance and is taking new patients!  You'd be surprised how many doctors here are not taking new patients! Monday morning at 9:30 I will be seeing Dr. Magaly Villafradez-Diaz, M.D., in [...]

The Breath of God

The Eighteenth (18th) Sunday After Pentecost The Celebration of the Holy Mass Rite I, Rt. Rev. Edward L. Tatro, Jr., Celebrant The responses of the faithful are in italics. 23 September 2018 Entrance Hymn: Breath on Me, Breath of God https://youtu.be/V11FlO0slcs Bishop Tatro: Let Us Begin All things as we should.  Blessed be God:  Father, [...]

Calling All Prayer Warriors

Snowie's Aunt Judy, a wonderful woman.  Is battling both Leukemia and Fibromyalgia.   We got a report today that Aunt Judy's white count is dangerously low.  I'm calling on all my readers and subscribers to pause for a moment to pray for Mrs. Judy Dobbins.  It would mean the world to Snowie, myself and the Dobbins [...]

Tropical Storm Gordon

We are currently being impacted by Tropical Storm Gordon. We are on the East edge of the storm, we are in Brevard County,  and will be getting those outer and first inner bands of this storm). Thankfully it will not be a direct hit for us.  Currently, we are overcast with scattered downpours and a [...]

Feast of St. Lawrence

The Holy Feast Day of Saint Lawrence, Deacon and Martyr Lectionary: A Reading from the 2nd Letter to the Corinthians 9:6-10 (ESV) The Cheerful Giver [6] The point is this: whoever sows sparingly will also reap sparingly, and whoever sows bountifully will also reap bountifully. [7] Each one must give as he has decided in [...]

Take Up God’s Way

11th Sunday after Pentecost 5 August 2018;  †Rt. Rev. Edward L. Tatro, Celebrant Processional Hymn: Raining Down Manna https://youtu.be/HasyjXwUmrg †Bishop Tatro: Let us Begin all things as we should! Blessed be God:  Father, Son, and Holy Spirit. The People: And blessed be his kingdom, now and forever. Amen. †Bishop Tatro: Almighty God, unto whom all [...]